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Bibliographic Record Display

• Title:Crucial decisions at the beginning of life : parents' experiences of treatment withdrawal from infants / Hazel E. McHaffie in association with Peter W. Fowlie [and others] ; foreword by David Harvey.
  
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• Author/Creator:McHaffie, Hazel.
  
• Published/Created:Abingdon : Radcliffe Medical, ©2001.
  

• Holdings

  Holdings Record Display

  • Location:WOODWARD LIBRARY stacksWhere is this?
    
  • Call Number: W50 .M47843 2001
    
  • Number of Items:1
    
  • Status:Available
    

   
• Library of Congress Subjects:Bereavement.
  Infants--Death.
  Infants--Diseases--Treatment--Decision making.
  
• Medical Subjects: Euthanasia, Passive--psychology.
  Parents--psychology.
  Bereavement.
  Infant.
  Infant, Newborn.
  Infant, Newborn, Diseases--therapy.
  Medical Futility.
  Parent-Child Relations.
  Social Support.
  
• Description:xviii, 440 pages : illustrations ; 25 cm
  
• Summary:BMA Medical Book Of The Year. This is a unique and valuable work, which traces the experiences of over 100 parents who have lived through the loss of a baby. It follows them from pregnancy through to13 months after the death. Based on rigorous scientific research it describes their feelings when crucial decisions are made on behalf of their child, and examines their capacity to take responsibility for such decisions. By analysing those factors which help or hinder them, the book provides guidance to health professionals on how the services they offer may be improved. Neonatologists, paediatricians, midwives and neonatal nurses will find it an essential and enlightening read. Primary care clinicians, intensive care staff and hospital chaplains will discover insights which help them to support a wider group of patients and relatives. 'This is an important book. It recounts the experiences of families whose babies died or were involved in the withdrawal of medical treatment. What the parents have to say is very revealing and demonstrates how easy it is to make mistakes in their care. Their comments are instructive and will help us in the care of other families. We must aim to give faultless care, but need to recognise that we often fall short of our aim. The parents who recounted the events in these interviews are excellent teachers in showing us where it is easy to go wrong' From the Foreword by David Harvey.
  
• Notes:Includes bibliographical references (pages 417-427) and index.
  
• ISBN:9781857754797
  1857754794
  
• Contents:Introduction
  Parental Grief
  The study method
  The respondent families
  Pregnancy and birth (pregnancy up to the onset of labour
  The labour and delivery
  When things went wrong
  Decision making
  Management of dying
  The Funeral
  Follow up
  The effect on death on the family
  Support in bereavement
  Parents' opinions
  Some concluding thoughts
  Recommendation
  Appendix One: Data on non-respondent families
  References.