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    Muscular dystrophy sourcebook : basic consumer health information about congenital, childhood-onset, and adult-onset forms of muscular dystrophy ... / edited by Joyce Brennfleck Shannon.

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    • Title:Muscular dystrophy sourcebook : basic consumer health information about congenital, childhood-onset, and adult-onset forms of muscular dystrophy ... / edited by Joyce Brennfleck Shannon.
    •    
    • Other Contributors/Collections:Shannon, Joyce Brennfleck.
    • Published/Created:Detroit, MI : Omnigraphics, Inc., ©2004.

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    • Library of Congress Subjects:Muscular dystrophy--Popular works.
    • Medical Subjects: Muscular Dystrophies--Resource Guides.
    • Edition:1st ed.
    • Description:xiii, 577 pages : illustrations ; 23 cm.
    • Series:Health reference series.
    • Summary:"This Sourcebook provides health information about childhood-onset and adult-onset muscular dystrophies, including congenital, Duchenne, Becker, Emery-Dreifuss, distal, limb-girdle, facioscapulohumeral, myotonic, and ophthalmoplegic muscular dystrophy. Readers will learn about the causes, diagnosis, treatment, and management of muscular dystrophy. Tips for parenting children with muscular dystrophy and for home care are also included, along with a glossary and directories of additional resources."--BOOK JACKET.
    • Notes:Includes index.
    • ISBN:078080676X (hard cover : alk. paper)
    • Contents:Pt. I. Overview of muscular dystrophy
      Ch. 1. What are muscular dystrophies?
      Ch. 2. Myopathies : diseases of the muscles
      Ch. 3. Metabolic diseases of the muscles
      Ch. 4. Myositis : inflammatory diseases of the muscles
      Pt. II. Congenital and childhood-onset muscular dystrophies
      Ch. 5. Congenital muscular dystrophy
      Ch. 6. Duchenne muscular dystrophy
      Ch. 7. Becker muscular dystrophy
      Ch. 8. Emery-Dreifuss muscular dystrophy
      Pt. III. Adult-onset muscular dystrophies
      Ch. 9. Distal muscular dystrophy
      Ch. 10. Facioscapulohumeral muscular dystrophy (FSHD)
      Ch. 11. Limb-girdle muscular dystrophy
      Ch. 12. Myotonic muscular dystrophy
      Ch. 13. Ophthalmoplegic muscular dystrophy
      Pt. IV. Diagnostic tests
      Ch. 14. Accurate and affordable diagnosis of Duchenne muscular dystrophy
      Ch. 15. New test for myotonic muscular dystrophy
      Ch. 16. Creatine kinase test
      Ch. 17. Muscle biopsy
      Ch. 18. Electromyography (EMG)
      Ch. 19. Gene testing
      Pt. V. Treatment and management of muscular dystrophies and related concerns
      Ch. 20. Osteoporosis : a serious, but manageable effect of muscular dystrophy
      Ch. 21. The heart is a muscle, too : cardiac problems in muscular diseases
      Ch. 22. Anesthesia risks with muscular dystrophy
      Ch. 23. Inflammation in neuromuscular disease
      Ch. 24. Progress in treatments for muscular dystrophy
      Ch. 25. Physical therapy : flexibility, fitness, and fun
      Ch. 26. Managing breathing difficulties
      Ch. 27. Pain control and neuromuscular disease
      Ch. 28. Treating scoliosis in muscular dystrophy
      Ch. 29. Achilles tendon release
      Ch. 30. Treatment for Duchenne muscular dystrophy
      Pt. VI. Care and management of muscular dystrophy at home
      Ch. 31. Handling disability
      Ch. 32. Home adaptations for living with muscular dystrophy
      Ch. 33. 101 hints to help patients with muscular dystrophy
      Ch. 34. Wheelchairs for children and adults with muscular dystrophy
      Ch. 35. Home health care
      Ch. 36. Feeding tubes
      Ch. 37. Managing toileting and hydration
      Pt. VII. Parenting children with muscular dystrophy
      Ch. 38. You are not alone : dealing with a muscular dystrophy diagnosis
      Ch. 39. Discussing muscular dystrophy with family and friends
      Ch. 40. Daily life with muscular dystrophy
      Ch. 41. Age and mobility stages
      Ch. 42. Education rights and responsibilities of parents of children with muscular dystrophy
      Ch. 43. Estate planning issues when parents have a disabled child
      Pt. VIII. Additional information
      Ch. 44. Glossary of important muscular dystrophy terms
      Ch. 45. Directory of organizations with muscular dystrophy information
      Ch. 46. Directory of on-line providers of information and equipment for people with muscular dystrophy.
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