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    Baby at risk : the uncertain legacies of medical miracles for babies, families, and society / Ruth Levy Guyer.

    • Title:Baby at risk : the uncertain legacies of medical miracles for babies, families, and society / Ruth Levy Guyer.
    •    
    • Author/Creator:Guyer, Ruth Levy.
    • Published/Created:Sterling, Va. : Capital Books, ©2006.
    • Holdings

       
    • Library of Congress Subjects: Neonatal intensive care--Moral and ethical aspects.
      Newborn infants--Care--Moral and ethical aspects.
      Newborn infants--Diseases--Moral and ethical aspects.
      Medical ethics.
    • Medical Subjects:Intensive Care, Neonatal--ethics.
      Disabled Persons.
      Infant, Newborn, Diseases.
      Infant, Newborn.
      Intensive Care Units, Neonatal--ethics.
    • Genre/Form:Biographies.
    • Edition:1st ed.
    • Description:xx, 161 pages : ports ; cm.
    • Series:Capital currents book.
    • Summary:"Baby at Risk" explores the growing phenomenon of "miracle" births and infants born with major medical problems that threaten or impair their health for life. The book examines the new assisted-reproduction technologies that are producing their share of miracle babies--but also a burgeoning population of imperiled newborns. Then there are the neonatal intensive care rescues that keep extremely premature and critically ill babies alive--some to live healthy lives, but others to face a bleak lifetime during which their families must care for them. Baby at Risk asks some very hard questions: whether some high-tech rescues serve the best interests of babies, their families, and the wider social good--or are they just satisfying the contemporary and ever-increasing Western passion for using expensive technologies? And, who are the key people who should be making decisions about imperiled newborns? Like the Terry Schiavo debate, these issues affect not only the patients, their families, and health workers, but also the government, media, and society at large. Through extensive interviews with parents and medical and nursing staff, and an exploration of ethical principles that guide deliberations about medical decisions, Baby at Risk examines the dilemmas that at-risk babies raise, considers the responses of those who care for and about babies, and proposes strategies for more effective and balanced decision-making in the uncertain world of imperiled newborns.
    • Notes:Includes bibliographical references (pages [151]-154)and index.
    • ISBN:9781933102269 (alk. paper)
      1933102268 (alk. paper)
    • Contents:The NICU scene
      Born at risk
      Birth of the NICU
      "Miracle" mythology
      Comfort care
      Parents matter
      Quality of life matters
      Coping with complexity
      Advance directives
      Legislating lives
      Money matters
      Experimenting with babies
      Desirable outcomes
      Life in the NICU
      Death in the NICU
      Immense suffering
      Sharing responsibility.
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