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• Title:Data data everywhere : access and accountability? / edited by Colleen M. Flood.
  
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• Other Contributors/Collections:Flood, Colleen M.
  Queen's University (Kingston, Ont.). School of Policy Studies.
  
• Published/Created:Montreal ; Ithaca [N.Y.] : McGill-Queen's University Press ; Kingston, ON : School of Policy Studies, Queen's University, ©2011.
  

• Holdings

  Holdings Record Display

  • Location:WOODWARD LIBRARY stacksWhere is this?
    
  • Call Number: WX173 .D232 2011
    
  • Number of Items:1
    
  • Status:Available
    

   
• Library of Congress Subjects:Medical records--Access control--Canada.
  Privacy, Right of--Canada.
  Health--Research--Canada.
  
• Medical Subjects: Medical Records--Canada.
  
• Description:x, 284 pages : ill ; 23 cm.
  
• Series:Queen's policy studies.
  
• Summary:Hospitals, doctors' offices, and pharmacies are sitting on some very valuable information, your medical information. As health-care providers enter the digital world and computerize their patients' records in an effort to improve the efficiency and quality of care, they are also building a valuable health research tool. The files in their databases may contain the answers to many medical questions we currently face, but they also contain private information that could potentially be misused. Data Data Everywhere highlights the challenges that lie ahead and proposes a uniquely Canadian framework for striking a balance between the benefits of allowing researchers to access medical information and the privacy concerns of individuals. In addition to contributing toward a sustainable model for secondary use of data in health research, the book contributes significantly to research in this field and serves as an essential comparative reference for similar jurisdictions.
  Colleen M. Flood is scientific director, Institute of Health Services and Policy Research, Canadian Institutes of Health Research. --Book Jacket.
  
• Notes:Co-published by: School of Policy Studies, Queen's University.
  Includes bibliographical references and index.
  
• ISBN:9781553392361 (pbk.)
  1553392361 (pbk.)
  9781553392378 (bound)
  155339237X (bound)
  
• Contents:Machine generated contents note: Searching for a Sweet Spot: How Do We Trade Off Research Benefits With Health Information Privacy Concerns?
  Health Research and Data Protection: How Can Researchers Contribute to the Policy Debate? / Bryan Thomas / Colleen M. Flood
  Access Decisions: A Nexus of Considerations / Patricia Kosseim
  Balancing Safety, Quality, Security, and Privacy: The Case of Prescription Drugs / William W. Lowrance
  Effect of Privacy Legislation on Observational Research: A Commentary / Robyn Tamblyn
  Database Development: A Major Need and Challenge to Accelerate Health Services Research / Jack V. Tu / Andrea S. Gershon
  Privacy Issues and the Canadian Medical Association Health Information Privacy Code / Dorothy Pringle
  Using Administrative Data for Quality Improvement: Capacity and Opportunity / Robert Ouellet
  Getting Lost in Doing Good: A Societal Reality Check / Alan Katz
  How and Why Does It "Work" at the Manitoba Centre for Health Policy? A Model of Data Linkage, Interdisciplinary Research, and Scientist/User Interactions / Wendy Armstrong
  Exploiting the Secondary Use of Health Data for Effective Cancer Control: Opportunities and Risks / Patricia Martens
  Methods for Ascertaining Chronic Disease Cases from Administrative Data / Terrence Sullivan / Kamini Milnes / Pamela Spencer / Melissa Hudson / Roger Chafe
  Gaining Trust, Ensuring Security: The Evolution of an Ontario HIV Cohort Study / Lisa M. Lix
  Making the Most of the Current Environment: Secondary Uses of Data for Cancer Research and System Management / Darien Taylor / David Kerry / Carol Major / Megan Edmiston / Laurel Challacombe / Dale McMurchy / Peggy Millson / Sean B. Rourke / Mark Fisher
  Roadmap to Research Uses of Electronic Health Information / Simon B. Sutcliffe
  Securing a Bright Health Information Future: Context, Culture, and Strategies / Elaine Gibson / Don Willison / Kim McGrail.