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    Palliative care for infants, children, and adolescents : a practical handbook / edited by Brian S. Carter, Marcia Levetown, Sarah E. Friebert.

    • Title:Palliative care for infants, children, and adolescents : a practical handbook / edited by Brian S. Carter, Marcia Levetown, Sarah E. Friebert.
    •    
    • Other Contributors/Collections:Carter, Brian S., 1957-
      Levetown, Marcia, 1960-
      Friebert, Sarah E.
    • Published/Created:Baltimore : Johns Hopkins University Press, 2011.
    • Holdings

       
    • Library of Congress Subjects:Terminally ill children--Care--Handbooks, manuals, etc.
    • Medical Subjects: Palliative Care--methods.
      Terminal Care--methods.
      Adolescent.
      Child.
      Chronic Disease.
      Infant.
    • Genre/Form:Handbooks and manuals.
    • Edition:2nd ed.
    • Description:xvi, 539 pages : illustrations ; 23 cm.
    • Summary:There are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition. Written by leading researchers, clinicians from relevant disciplines, family members, and advocates, this practical guide provides professionals involved in pediatric palliative and end-of-life care with comprehensive information in a single volume. Thoroughly updated and expanded, this edition includes chapters addressing the unique challenges facing children with HIV/AIDS and their families, care in home and ICU settings, difficult decision-making processes, and the importance of communication with the child and family, as well as completely new chapters on spiritual dimensions of care and educational and advocacy initiatives. Intended for primary care physicians, pediatric practitioners and specialists, home care and hospice personnel, pastoral counselors, and affected families, the book includes useful resource and reference material and practical, hands-on tips. With contributions from an international group of expert educators, clinicians, and parents, this book takes a truly interdisciplinary approach to pediatric palliative care, presenting best practices, clear instruction, and the latest information and research for anyone involved in pediatric palliative and end-of-life care.
    • Notes:Includes bibliographical references and index.
    • ISBN:9781421401485 (hardcover : alk. paper)
      9781421401492 (pbk. : alk. paper)
      1421401487 (hardcover : alk. paper)
      1421401495 (pbk. : alk. paper)
    • Contents:Machine generated contents note: pt. I SOCIETAL AND INSTITUTIONAL ISSUES
      1. Epidemiology and Health Services Research / Kari R. Hexem
      2. Goals, Values, and Conflict Resolution / Deborah L. Dokken
      3. Barriers to Integrating Palliative Care and Potential Solutions / David M. Steinhorn
      4. Educational Initiatives / David Browning
      5. Art of Advocacy / Melody Hellsten
      pt. II CYCLE OF CARE
      6. Decision Making / Margaret Comeau
      7. Communication Skills and Relational Abilities / Dianne Gray
      8. Psychosocial Needs of the Child and Family / Kris Ford
      9. Spiritual Dimensions / Chris Feudtner
      10. Holistic Management of Symptoms / Dianne Gray
      11. Bereavement / Lee Ann Grimes
      12. Other Side of Caring: Caregiver Suffering / M. Karen Ballard
      pt. III SPECIAL CARE ENVIRONMENTS AND PATIENT POPULATIONS
      13. Palliative Care in the Neonatal-Perinatal Period / Brian S. Carter
      14. Palliative Care in the Pediatric Intensive Care Setting / Stephen Liben
      15. Palliative Care in the Home, School, and Community / Lee Ann Grimes
      16. Palliative Care for the Child Who Has a Genetic Condition / Brian S. Carter
      17. Integrating Palliative Care with HIV Care and Treatment / Maureen E. Lyon
      18. Integrating Palliative Care with Pediatric Hematology/Oncology / Janice Wheeler.
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