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    Ethical foundations of palliative care for Alzheimer disease / edited by Ruth B. Purtilo and Henk A.M.J. ten Have ; foreword by Christine K. Cassel.

    • Title:Ethical foundations of palliative care for Alzheimer disease / edited by Ruth B. Purtilo and Henk A.M.J. ten Have ; foreword by Christine K. Cassel.
    •    
    • Other Contributors/Collections:Purtilo, Ruth B.
      ten Have, H.
    • Published/Created:Baltimore : Johns Hopkins University Press, ©2004.
    • Holdings

       
    • Library of Congress Subjects:Alzheimer's disease--Patients--Palliative treatment--Moral and ethical aspects.
      Palliative treatment--Moral and ethical aspects.
      Alzheimer's disease--Patients--Hospice care--Moral and ethical aspects.
    • Medical Subjects: Alzheimer Disease--nursing.
      Ethics, Professional.
      Palliative Care.
    • Description:xxi, 368 pages : illustrations ; 24 cm.
    • Notes:Includes bibliographical references and index.
    • ISBN:0801878705 (hbk.)
    • Contents:Foreword / Christine K. Cassel
      Introduction : historical overview of a current global challenge / Henk A. M. J. ten Have and Ruth B. Purtilo
      Pt. I. health care challenge of Alzheimer disease : basic societal, pathological, and clinical issues
      1. Darkness cometh : personal, social, and economic burdens of Alzheimer disease / Richard L. O'Brien
      2. Neuropathology and symptomatology in Alzheimer disease : implications for caregiving and competence / Roger A. Brumback
      3. clinical challenge of uncertain diagnosis and prognosis in patients with dementia / David A. Bennahum
      Pt. II. European voices on U.S. and European models of palliative care
      4. Expanding the scope of palliative care / Henk A. M. J. ten Have
      5. Hospital-based palliative care and dementia, or what do we treat patients for and how do we do it? / Marcel G. M. Olde Rikkert and Anne-Sophie Rigaud
      6. Elderly persons with advanced dementia : an opportunity for a palliative culture in medicine / Pierre Boitte
      Pt. III. Philosophical and theological explorations
      7. Autonomy and the lived body in cases of severe dementia / Wim J. M. Dekkers
      8. moral self as patient / Judith Lee Kissell
      9. practice of palliative care and the theory of medical ethics : Alzheimer disease as an example / Rien Janssens
      Pt. IV. Clinical ethics issues : focus on patients and caregivers
      10. tendency of contemporary decision-making strategies to deny the condition of Alzheimer disease / Jos V. M. Welie
      11. Advance directives and end-of-life decision making in Alzheimer disease : practical challenges / Winifred J. Ellenchild Pinch
      12. Saying no to patients with Alzheimer disease: rethinking relations among personhood, autonomy, and world / Franz J. Illhardt
      13. ethical challenge of treating pain in Alzheimer disease : a dental case / Gunilla Nordenram
      14. Alzheimer disease and euthanasia / Bert Gordijn
      Pt. V. Organizational ethics issues : educational initiatives, laws, and allocation decisions
      15. role of nurses and nursing education in the palliative care of patients and their families / Elizabeth Furlong
      16. Ethical dimensions of Alzheimer disease decision making : the need for early patient and family education / Linda S. Scheirton
      17. Changing patterns of protection and care for incapacitated adults : perspectives from a European society in transition / Eugenijus Gefenas
      18. Social marginalization of persons with disability : justice considerations for Alzheimer disease / Ruth B. Purtilo
      Commentary on part V : a clinician's commentary from a post-Soviet society on organizational issues of care for Alzheimer disease / Givi Javashvili
      Pt. VI. Research underpinnings for an ethical model of palliative care
      19. Biomedical research in Alzheimer disease / Patricio F. Reyes
      20. Conducting research in the Alzheimer disease population : balancing individual, group, family, and societal interests / Soren Holm
      21. Drugs and dementia : pharmacotherapy and decision making by primary caregivers / Amy M. Haddad
      App. A. Declaration of Berg en Dal on ethical principles guiding palliative care of persons with Alzheimer's disease
      Commentary / Jos V. M. Welie and Bert Gordijn
      App. B. Framework for an educational module for health professionals / Richard L. O'Brien and Wim J. M. Dekkers.
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